Myasthenia Gravis Foundation of America (MGFA) Kicks Off Myasthenia Gravis Awareness Month Around the World
Rare disease community members take action in June to spread awareness and advocate for better treatments and a cure for myasthenia gravis
BOSTON, May 29, 2025 /PRNewswire/ -- Myasthenia Gravis Foundation of America (MGFA™), the largest, leading patient advocacy organization in the United States solely dedicated to the myasthenia gravis (MG) community, announced the official kickoff of MG Awareness Month in June around the world.
The global MG Community is turning Awareness into Action to educate everyone about the challenges of the rare neuromuscular disease myasthenia gravis (MG). Individuals diagnosed with myasthenia gravis as well as caregivers, medical experts and researchers, pharmaceutical and biotech companies, and MG Community members are generating awareness of the disease and volunteering to spread the word about how MG impacts overall quality of life.
MG Community members from many countries collaborate and creatively plan and conduct awareness activities – everything from media relations, international events and gatherings, legislative advocacy, social media sharing, fundraisers, and more – that will increase awareness of the effects of the disease while outlining new treatments and research progress.
MG Awareness Month is a time to highlight how MG profoundly impacts the lives of those diagnosed. MGFA educates and informs, advocates and empowers, and funds critical research that could lead to improved diagnosis times, and an overall improved quality of life through better treatments and disease management strategies. June marks an opportunity for all MG-focused organizations and support groups the world over to collaborate and work together to achieve higher levels of awareness and action.
Approximately 90,000 to 100,000 individuals are diagnosed and living with MG in the United States alone. MG patients suffer with debilitating physical symptoms such as extreme fatigue and muscle weakness that impact a person's ability to see, swallow, smile, walk or breathe. MGFA focuses on funding promising research discoveries for better treatments while providing impactful programs, guidance, and education to support members of the MG Community.
MGFA provides toolkits, ideas, and methods of taking action and driving awareness. The organization also raises funds through its DARE to CARE program that supports MG research grant funding and educational materials and events.
MGFA Contact Information:
Michael Antonellis
Vice President, Global Marketing & Communications
mantonellis@myasthenia.org
+1-617-610-2411
Kate Stober
National Director, Digital and Content Marketing
kstober@myasthenia.org
+1-480-744-2705
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SOURCE Myasthenia Gravis Foundation of America, Inc.